Setting up a Surveillance System


What is Surveillance?

Surveillance is the ongoing systematic collection, collation, analysis and interpretation of data and the dissemination of information to those who need to know in order that action may be taken.

 

Surveillance:

Collection

Analysis

Interpretation

Dissemination

 

Public Health Action:

Disease investigation, control and prevention

Planning and evaluation

Policy making

 

Surveillance can be active (special effort to collect data and confirm diagnoses) or passive (routine)

Purposes & Uses of Surveillance

1. Detection of epidemics

2. Monitoring secular trends and identification of at-risk groups

3. Evaluation of an intervention

4. Monitoring control and prevention measures

5. Monitoring changes in infectious agents

6. Planning for the future and informing policy

7. Generating hypotheses and stimulation public health research

8. Archive of disease activity

Types of Surveillance

1. Routine - e.g. notifications, COVER

2. Senitel - i.e. sample surveillance

3. Enhanced - TB, HIV/STIs, meningococcal disease

Planning a Surveillance System

1. Establish Objectives

2. Develop case definitions

3. Determine data source or data collection mechanism

4. Develop data collection instruments

5. Field test methods

6. Data analysis and interpretation

7. Dissemination and feedback

8. Evaluation

 

Establish Objectives

Identifying high priority health events

 

Disease related:

Frequency (incidence, prevalence, mortality, morbidity)

Severity (case fatality, hospitalisation rate, QALYs)

Cost to society

Preventability

Communicability

 

Society related:

International obligations

Public & mass media interest

Political will to prevent

Availability of data

 

Establish case definitions

Criteria - i.e. person, place, time, clinical or laboratory diagnosis, epidemiological features

 

Sources of data

1. Lab reports

2. Statutory notifications

3. Hospital episode statistics

4. Clinical reporting - sentinel reporting system

5. COVER

6. Other clinical reports - e.g. BPSU, AIDS/HIV, KC60

7. Death certs

Evaluation of a System

1. Describe the public health importance of the health event under surveillance consider:

Total numbers of cases, incidence and prevalence

Indices of severity (death rate, case fatality ratio)

Can it be prevented?

 

2. Describe the surveillance system to be evaluated

List its objectives (see purposes & uses of surveillance system)

Describe the health event under surveillance

Describe the components and operation of the system:

a. What information is collected?

b. Who collects the data?

c. Time to collect the data

d. Mode of data transfer and storage

e. Who analyses data?

f. How is it disseminated?

g. Who is it disseminated to?

 

3. Discuss validity and repeatability of case definitions in various types of surveillance data

 

4. Indicate the level of usefulness by describing the actions taken as a result of data collected by the surveillance system

 

5. Describe cost/resources needed to run surveillance

 

6. Evaluate the quality of the surveillance system by assessing its attributes

Flexibility

Representativeness

Acceptability

Timeliness

Sensitivity

Simplicity

 

7. List conclusions and recommendations

 

8. Ways to improve the system

Improve awareness of disease by increasing education

Simplify reporting

Frequent feedback

Use multiple sources and methods

Active surveillance

Sentinel surveillance

Computerisation

Characteristics of a Surveillance System

Feedback (distinguishes it from a database)

Rapidity

On-going

Standardised nature

Ease

Limitations of a Surveillance System

Completeness

Accuracy

Relevance and/or representiveness

Timeliness

Sources of Specific Surveillance data

TB

1. Statutory notifications

2. Lab reports

3. Death certs

4. Mycobnet

5. Enhanced tuberculosis surveillance

Nosocomial

1. Hospital Episodes Statistics

2. Nursing, doctor notes

3, Lab reports and local lab based surveillance (MRSA, Clostridium difficile)

4. Surgical Site Infection Surveillance Service

Seasonal Flu

1. Royal College of General Practitioners scheme

2. Mortality statistics

3. Lab reports

4, Hopsital Episodes Statistics

Legionnaires' Disease

Incidence estimated from hospital admissions for unspecified community acquired pneumonia (CAP)

'Gold standard' surveillance

Monitoring trends - (1) annual data sets (UK/EWGLNET countries) (2) age groups (3) sex distribution (4) severity of illness and proportion of deaths (5) case type (6) method of diagnosis (urinary, serological, culture)

Local, regional, national and European surveillance [European Working group for Legionella Infections, Annual European report of all legionella cases (travel/nontravel) (EWGLI), International surveillance of travel associated legionnaires' diseases (EWGLINET)]

Five Principles of Surveillance

1. Systematic collection of data

2. Analyses of data to produce statistics (by time, person, place)

3. Interpretation to provide information (be aware of timeliness, completeness, representation)

4. Distribution of information to those who require action e.g. CDR weekly

5. Continuing surveillance to evaluate action

 

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